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The gift of hope—and financial help

The Presley family

When John Presley was diagnosed with acute lymphoblastic leukemia in February 2016, his doctor told him his best chance of survival would be to first get his leukemia into remission, then to get a bone marrow transplant

John spent 110 days in the hospital undergoing three chemotherapy regimens. While the first two failed to get him into remission, the third—a much harsher treatment—succeeded. His next step toward a cure: a bone marrow transplant.

While none of John's siblings were a suitable marrow donor match, four genetic matches were found for him on the Be The Match Registry®. And on Nov. 16, 2016, he received a bone marrow transplant.

John says his son, Max, was his inspiration throughout his transplant journey. Born in October 1998 with a cleft lip and palate, no lower jaw, and profoundly deaf, Max was given less than a 5% chance of survival. Over the next several years, he had a total of 34 surgeries. "Max just saw that as his life and he never let it get him down," John shares.

Experiencing firsthand the importance of hope, the Presley family was driven to deliver hope to other patients and their families. "Because of the inspiration my son has given me, the care and love my wife, Amy, has given me, and Be The Match®, I survived this time in my life," John says.

It's been over four years since John received a successful marrow transplant. Now he and his family are dedicating their time and resources to helping other patients receive the life-saving treatment they so desperately need. With a personal donation of $50,000, they established the John and Amy Presley Recovery Grant Fund, which provides patients and families tangible financial support as they navigate through their transplant journey.

"I've gotten to know Be The Match a lot better since my transplant," John says. "Because of their work, I've gotten four more years with Amy, and I've been able to see Max finish high school and move on to college."

John with his son Max

John Presley and his inspiration, son Max

The Presleys' help couldn't have come at a better time. For many patient families, the economic impact of the pandemic has been nothing short of devastating as many are bearing the financial weight of the uninsured costs associated with transplants.

"Not everyone is as lucky as I am," John says. "I was stunned to find out so many people need transplants and can't get one."

Beyond their own financial support, John and Amy called on their personal network to raise an additional $115,000 for patient assistance. Amy also joined the Be The Match Foundation® Campaign Committee, a leadership group that will help the foundation reach the goal of raising $100 million by 2024.

"Because we've been so fortunate, we feel privileged to help Be The Match work on initiatives that will make transplants more accessible," Amy says.

Without the philanthropic support of our life-saving community, the Be The Match patient assistance program wouldn't be possible. Contact Amy Bigot at (763) 406-8725 | Toll Free: (800) 507-5427 or amy.bigot@nmdp.org to discuss the impact your gift can make.

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A charitable bequest is one or two sentences in your will or living trust that leave to Be The Match Foundation a specific item, an amount of money, a gift contingent upon certain events or a percentage of your estate.

an individual or organization designated to receive benefits or funds under a will or other contract, such as an insurance policy, trust or retirement plan

Bequest Language

"I, [name], of [city, state, ZIP], give, devise and bequeath to Be The Match Foundation [written amount or percentage of the estate or description of property] for its unrestricted use and purpose."

able to be changed or cancelled

A revocable living trust is set up during your lifetime and can be revoked at any time before death. They allow assets held in the trust to pass directly to beneficiaries without probate court proceedings and can also reduce federal estate taxes.

cannot be changed or cancelled

tax on gifts generally paid by the person making the gift rather than the recipient

the original value of an asset, such as stock, before its appreciation or depreciation

the growth in value of an asset like stock or real estate since the original purchase

the price a willing buyer and willing seller can agree on

The person receiving the gift annuity payments.

the part of an estate left after debts, taxes and specific bequests have been paid

a written and properly witnessed legal change to a will

the person named in a will to manage the estate, collect the property, pay any debt, and distribute property according to the will

A donor advised fund is an account that you set up but which is managed by a nonprofit organization. You contribute to the account, which grows tax-free. You can recommend how much (and how often) you want to distribute money from that fund to Be The Match or other charities. You cannot direct the gifts.

An endowed gift can create a new endowment or add to an existing endowment. The principal of the endowment is invested and a portion of the principal’s earnings are used each year to support our mission.

Tax on the growth in value of an asset—such as real estate or stock—since its original purchase.

Securities, real estate or any other property having a fair market value greater than its original purchase price.

Real estate can be a personal residence, vacation home, timeshare property, farm, commercial property or undeveloped land.

A charitable remainder trust provides you or other named individuals income each year for life or a period not exceeding 20 years from assets you give to the trust you create.

You give assets to a trust that pays our organization set payments for a number of years, which you choose. The longer the length of time, the better the potential tax savings to you. When the term is up, the remaining trust assets go to you, your family or other beneficiaries you select. This is an excellent way to transfer property to family members at a minimal cost.

You fund this type of trust with cash or appreciated assets—and may qualify for a federal income tax charitable deduction when you itemize. You can also make additional gifts; each one also qualifies for a tax deduction. The trust pays you, each year, a variable amount based on a fixed percentage of the fair market value of the trust assets. When the trust terminates, the remaining principal goes to Be The Match as a lump sum.

You fund this trust with cash or appreciated assets—and may qualify for a federal income tax charitable deduction when you itemize. Each year the trust pays you or another named individual the same dollar amount you choose at the start. When the trust terminates, the remaining principal goes to Be The Match as a lump sum.

A beneficiary designation clearly identifies how specific assets will be distributed after your death.

A charitable gift annuity involves a simple contract between you and Be The Match where you agree to make a gift to Be The Match and we, in return, agree to pay you (and someone else, if you choose) a fixed amount each year for the rest of your life.

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